Asia Pacific Alliance of Rare Disease Organisations
Singapore, Singapore
About
Asia Pacific Alliance of Rare Disease Organisations is a non-profit network based in Singapore, Singapore working on health.
An umbrella network of patient groups and organisations serving or advocating for the rare disease community in the Asia Pacific region. Its members are rare disease patient groups, societies and alliances. It supports members through skills development, sharing information and data resources, and tracking policy initiatives affecting rare diseases, with the aim of improving treatment outcomes and strengthening a united regional voice for patients and families.
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