AP

Asia Pacific Alliance of Rare Disease Organisations

Singapore, Singapore

Health
Network or umbrellaInternational reach
Profile last updated: October 6, 2026

About

Asia Pacific Alliance of Rare Disease Organisations is a non-profit network based in Singapore, Singapore working on health.

An umbrella network of patient groups and organisations serving or advocating for the rare disease community in the Asia Pacific region. Its members are rare disease patient groups, societies and alliances. It supports members through skills development, sharing information and data resources, and tracking policy initiatives affecting rare diseases, with the aim of improving treatment outcomes and strengthening a united regional voice for patients and families.

Location

Singapore, Singapore

Organisation type

Network or umbrella

Focus areas

rare diseasespatient advocacyumbrella organisationcapacity buildingpolicy awarenessAsia Pacific

Causes & programmes

Causes

Health

Works for

PatientsFamilies

How they work

Capacity buildingAwareness & educationAdvocacy & campaigning

Funding & support

Ways to support

DonateMembershipVolunteerCorporate partnershipSponsorship

People

Management & team (1)

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