ASL - Association française du Syndrome de Lowe
Villiers-sur-Marne, France
About
Founded in 1994, ASL - Association française du Syndrome de Lowe is a non-profit association based in Villiers-sur-Marne, France working on health, medical research.
The Association française du Syndrome de Lowe is a non-profit association founded in 1994 under the French 1901 law and recognised as a charity in 2003. Based in Villiers-sur-Marne, France, it brings together families of children with Lowe syndrome, a rare genetic disease. It supports and advises families, raises awareness of the condition among the public and doctors, and funds research into Lowe syndrome, including grants for research programmes. Its board is made up of volunteer parents of affected children.
Location
Founded
Organisation type
Legal form
Focus areas
Languages
Causes & programmes
Causes
Works for
How they work
Programmes
Consultation multidisciplinaire Syndrome de Lowe
Health · France
Multidisciplinary consultation for children with Lowe syndrome at the Necker hospital in Paris.
Countries of operation
Funding & support
Funded by
Ways to support
Trust
Credentials & affiliations
Industry memberships
Partnerships
Fondation Maladies Rares
Other non-profits in France
View all308 Maison de l'Architecture en Nouvelle-Aquitaine
Arts & Culture, Community development +1 more
IESF Île-de-France
Education, Employment & Skills +1 more
OIS Grand Figeac
Sport for development, Health +2 more
Les Amis du Musée Condé - Château de Chantilly
Heritage, Arts & Culture
Fondation du Judaïsme Français
Community development, Arts & Culture +3 more
AFPIA Est-Nord
Education, Employment & Skills