ASL - Association française du Syndrome de Lowe

ASL - Association française du Syndrome de Lowe

Villiers-sur-Marne, France

HealthMedical researchTax-deductible donations
AssociationFounded 1994National reach
Profile last updated: May 3, 2026

About

Founded in 1994, ASL - Association française du Syndrome de Lowe is a non-profit association based in Villiers-sur-Marne, France working on health, medical research.

The Association française du Syndrome de Lowe is a non-profit association founded in 1994 under the French 1901 law and recognised as a charity in 2003. Based in Villiers-sur-Marne, France, it brings together families of children with Lowe syndrome, a rare genetic disease. It supports and advises families, raises awareness of the condition among the public and doctors, and funds research into Lowe syndrome, including grants for research programmes. Its board is made up of volunteer parents of affected children.

Location

Villiers-sur-Marne, France

Founded

1994

Organisation type

Association

Legal form

Association loi de 1901

Focus areas

rare diseaseLowe syndromefamilies supportmedical research

Languages

FR

Causes & programmes

Causes

HealthMedical research

Works for

FamiliesChildrenPatients

How they work

Direct servicesAwareness & educationGrant-making

Programmes

Consultation multidisciplinaire Syndrome de Lowe

Health · France

Multidisciplinary consultation for children with Lowe syndrome at the Necker hospital in Paris.

Countries of operation

France

Funding & support

Funded by

Individual donations

Ways to support

DonateMembership

Trust

Tax-deductible donations

Credentials & affiliations

Industry memberships

Alliance Maladies Rares

Partnerships

Fondation Maladies Rares

Other non-profits in France

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