AP

Australian Porphyria Association

Porphyria Association Inc.

VIC, Australia

HealthMedical research
AssociationFounded 1987National reach
Profile last updated: July 20, 2026

About

Founded in 1987, Australian Porphyria Association is a non-profit association based in Australia working on health, medical research.

The Australian Porphyria Association is a volunteer-run non-profit based in Victoria, Australia. Established in 1987, it supports people with porphyria, their families and carers in Australia and New Zealand. Its work includes peer support, education for patients and healthcare professionals, awareness campaigns, patient advocacy, and facilitating medical research into porphyria. It also hosts regular meetings and bi-annual conferences.

Location

Australia

Founded

1987

Organisation type

Association

Legal form

Inc.

Legal name

Porphyria Association Inc.

Focus areas

porphyriarare diseasepeer supportpatient advocacymedical researchawareness

Languages

EN

Causes & programmes

Causes

HealthMedical research

Works for

PatientsCarersFamilies

How they work

Direct servicesAwareness & educationAdvocacy & campaigningCommunity programmes

Programmes

Peer Support

Health · Australia, New Zealand

Peer support by email, phone and regular in-person meetings for people with porphyria, their families and carers, including at diagnosis.

Countries of operation

AustraliaNew Zealand

Other non-profits in Australia

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