Canadian Association of Pompe
Penticton, BC, Canada
About
Founded in 2013, Canadian Association of Pompe is a non-profit association based in Penticton, Canada working on health, medical research.
The Canadian Association of Pompe is a registered non-profit society, incorporated in 2013, that represents Pompe disease patients and families of all ages with members across Canada. It provides education, peer support and community connection, raises awareness of Pompe disease among the public and medical community, and advocates for access to treatment and for newborn screening for the condition.
Location
Founded
Organisation type
Legal form
Focus areas
Languages
Causes & programmes
Causes
Works for
How they work
Programmes
Pompe Empowerment Workshop
Health · Canada
Workshop welcoming Pompe patients and their families from across Canada for networking, learning and sharing.
Countries of operation
Credentials & affiliations
Partnerships
Sanofi, Amicus Therapeutics, Aro Biotherapeutics, Astellas, Shionogi
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