ELA International
Luxembourg, Luxembourg
About
Founded in 1992, ELA International is a non-profit association based in Luxembourg, Luxembourg working on medical research, health, children & youth.
ELA International is the umbrella body of seven ELA associations in Europe, formed by families affected by leukodystrophies, a group of rare genetic diseases that damage the myelin of the nervous system. Founded in 1992 by Guy Alba, it funds medical research into leukodystrophies, financing 601 research programmes since 1992 with a reported total of 51.9 million euros. It also supports patients and their families through respite weekends and social support organised by each member association. Its work covers Belgium, France, Germany, Italy, Luxembourg, Spain and Switzerland. Its main fundraising initiative is the Watches for ELA charity auction, held with Christie's, with proceeds going to research and family support. The organisation is headquartered in Luxembourg.
Location
Founded
Organisation type
Focus areas
Languages
Causes & programmes
Causes
Works for
How they work
Programmes
Watches for ELA
Medical research
Charity sale of unique watches created by watchmaking houses and auctioned with Christie's, with proceeds funding leukodystrophy research and support for families.
Respite weekends
Health
Weekends away for families affected by leukodystrophies, giving parents and children time together and contact with other families.
Countries of operation
Funding & support
Ways to support
Credentials & affiliations
Partnerships
Christie's, Andersen Genève, ArtyA, Atælier Haute Complication, Bovet, Girard-Perregaux, Konstantin Chaykin, Louis Erard, Montblanc, Richard Mille, OMEGA, Swatch, Ulysse Nardin
