FMDSA

FMDSA

Fibromuscular Dysplasia Society of America, Inc.

North Olmsted, Ohio, United States

HealthScience & ResearchTax-deductible donations
CharityFounded 2003International reach
Profile last updated: May 3, 2026

About

Founded in 2003, FMDSA is a charity based in North Olmsted, United States working on health, science & research.

FMDSA is a US-based not-for-profit patient advocacy organisation working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD), a rare arterial disease. Founded in 2003 and incorporated in Delaware, it builds awareness of FMD, funds research activities including a patient registry, provides patient support through groups and online communities, and educates patients, physicians and the wider healthcare community. It attends medical conferences and works with international patient groups and researchers.

Location

North Olmsted, United States

Founded

2003

Organisation type

Charity

Legal form

Delaware nonprofit corporation

Legal name

Fibromuscular Dysplasia Society of America, Inc.

Charity number

01-0771966

Focus areas

fibromuscular dysplasiarare diseasepatient advocacypatient registrymedical research

Languages

EN

Causes & programmes

Causes

HealthScience & Research

Works for

PatientsFamiliesCarers

How they work

Awareness & educationDirect servicesGrant-makingResearchAdvocacy & campaigning

Programmes

FMD Patient Registry

Health

Registry of FMD patients, originally the US Registry for Fibromuscular Dysplasia, created with the University of Michigan to study patient characteristics, markers, imaging and treatment.

FMDSA Inspire

Health

Online patient support community for people affected by FMD.

Physician Education Program

Health

Programme educating physicians and the medical community about FMD.

Grassroots Awareness Program

Health

Programme raising awareness of FMD among the public.

Funding & support

Funded by

Individual donationsMembership fees

Ways to support

DonateMembershipVolunteerFundraiseSponsorshipLegacy givingShop

Trust

Tax-deductible donationsGuideStar Platinum Seal of Transparency

Credentials & affiliations

Certifications

Health on the Net certified website

Issued by: Health on the Net Foundation

Awards

Champion of Hope Award

Global Genes

Industry memberships

National Organization for Rare Disorders (NORD)

Partnerships

University of Michigan, Cleveland Clinic, Union Home Mortgage

People

Management & team (2)

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