
FMDSA
Fibromuscular Dysplasia Society of America, Inc.
North Olmsted, Ohio, United States
About
Founded in 2003, FMDSA is a charity based in North Olmsted, United States working on health, science & research.
FMDSA is a US-based not-for-profit patient advocacy organisation working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD), a rare arterial disease. Founded in 2003 and incorporated in Delaware, it builds awareness of FMD, funds research activities including a patient registry, provides patient support through groups and online communities, and educates patients, physicians and the wider healthcare community. It attends medical conferences and works with international patient groups and researchers.
Location
Founded
Organisation type
Legal form
Legal name
Charity number
Focus areas
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Causes & programmes
Causes
Works for
How they work
Programmes
FMD Patient Registry
Health
Registry of FMD patients, originally the US Registry for Fibromuscular Dysplasia, created with the University of Michigan to study patient characteristics, markers, imaging and treatment.
FMDSA Inspire
Health
Online patient support community for people affected by FMD.
Physician Education Program
Health
Programme educating physicians and the medical community about FMD.
Grassroots Awareness Program
Health
Programme raising awareness of FMD among the public.
Funding & support
Funded by
Ways to support
Trust
Credentials & affiliations
Certifications
Health on the Net certified website
Awards
Champion of Hope Award
Industry memberships
Partnerships
University of Michigan, Cleveland Clinic, Union Home Mortgage
People
Management & team (2)
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