Fondation Ipsen

France

HealthDisabilityEducationScience & Research

Grant-making foundationInternational reach

Profile last updated: May 3, 2026

About

Fondation Ipsen is a grant-making foundation based in France working on health, disability, education +2 more.

Fondation Ipsen is a non-profit foundation under the aegis of Fondation de France. It works to improve the detection of rare diseases, encourage innovation, and support social and educational initiatives for people living with rare diseases. Its activities include grants and mini grants, free publishing on health, disability and rare diseases, media training for journalists, and awareness campaigns. It operates internationally.

Location

France

Organisation type

Grant-making foundation

Focus areas

rare diseasespatientsgrantspublishingawarenessdisabilityhealth literacy

Languages

ENFR

Causes & programmes

Causes

HealthDisabilityEducationScience & ResearchArts & Culture

Works for

PatientsCarersChildrenPeople with disabilities

How they work

Grant-makingAwareness & educationAdvocacy & campaigning

Programmes

Mini Grants

Health

Grants awarded to support high-impact projects on rare diseases.

Rare Disease Day

Health

Supports the globally coordinated Rare Disease Day movement with EURORDIS, backing newly joined national alliances in 25 countries.

Young Caregivers Respite Stay

Disability

Supports Jeunes Aidants Ensemble JADE in organising an interregional summer stay for young caregivers.

Publish Books for All: Fondation Ipsen BookLab

Education

Publishes free books on health, disability and rare diseases, distributed to schools and associations.

Fondation Ipsen Press

Science & Research

Publishes practical guides for professionals and investors on scientific and technical topics, founded in 2024.

Credentials & affiliations

Partnerships

Fondation de France, EURORDIS, National Press Foundation, Science/AAAS, Mayo Clinic, Children's National Rare Disease Institute, UCSF, CAPSAA, Jeunes Aidants Ensemble JADE, Filière AnDDI-Rares