Foreningen for hjertesyke barn
Oslo, Norway
About
Founded in 1976, Foreningen for hjertesyke barn is a non-profit association based in Oslo, Norway working on health, children & youth, medical research.
The Norwegian association for children with heart defects and their families. Founded in 1976, it is a membership organisation with 18 regional chapters across Norway. It offers peer support and information for families and health professionals, funds medical research on congenital heart disease, and runs the HOBS heart observation app for parents of newborns. It also organises the annual Hjertebarnløpet charity run in Oslo to raise funds for its work.
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HOBS (hjerteobservasjonsappen)
Health · Norway
A heart observation app for parents of newborns with heart defects, after discharge from hospital. Developed with Oslo University Hospital and tested with parents and health professionals. Under a research study evaluating its effects.
Likepersonordningen
Health · Norway
A volunteer peer-support service that connects relatives of children with heart defects with trained peers who share lived experience.
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Oslo universitetssykehus (OUS), Extrastiftelsen Dam, Hena AS, Lasseliten fond
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