Fundación EndoPR
Ponce, Puerto Rico, Puerto Rico
About
Founded in 2001, Fundación EndoPR is a non-governmental organisation based in Ponce, Puerto Rico working on health, medical research.
Fundación EndoPR is a Puerto Rican patient foundation for people with endometriosis, founded in 2001 and based in Ponce, Puerto Rico. Its mission is to improve the quality of life of people with endometriosis. It provides evidence-based information and educational articles, runs support groups, webinars and workshops, and advocates for public policy and wider public recognition of the condition. It also supports the endometriosis research programme of Ponce Health Sciences University, which studies the disease's epidemiology, genetics and diagnosis, and collects patient blood and tissue samples with ethics committee approval. Its materials are primarily in Spanish.
Location
Founded
Organisation type
Focus areas
Languages
Causes & programmes
Causes
Works for
How they work
Programmes
Grupos de Apoyo
Health · Puerto Rico
Online and in-person support groups, moderated by psychologists, where patients and carers share experiences.
EndoTeens
Children & Youth · Puerto Rico
Support group and activities for adolescents with endometriosis, including a study on the condition in young people.
Funding & support
Funded by
Credentials & affiliations
Partnerships
Ponce Health Sciences University, National Institutes of Health, Bayer, Mayo Clinic, Yale University
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