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Huntingtons Disease Association of Ireland

Dublin, Ireland

HealthMedical research
CharityFounded 1985National reach1-10 staff
Profile last updated: September 22, 2026

About

Founded in 1985, Huntingtons Disease Association of Ireland is a charity based in Dublin, Ireland working on health, medical research.

The Huntingtons Disease Association of Ireland (HDAI) is a national voluntary charity established in 1985 by members of Huntingtons disease families. It provides information, support and advocacy to people living with Huntingtons disease, people at risk of the condition, family carers, relatives and friends, and provides information to health and social care professionals. Its services include information and support, a financial wellbeing service, bereavement supports and carer support. HDAI also works to raise awareness of the condition among health and social care professionals, policy makers and the public, supports research participation and engages in advocacy for appropriate care plans and services. The association is governed by a voluntary board, is financed through statutory sector grants and donations from members and supporters, and is based at the Carmichael Centre in Dublin 7. It is registered as a charitable company with the Charities Regulatory Authority.

Location

Dublin, Ireland

Founded

1985

Organisation type

Charity

Legal form

Company limited by guarantee

Charity number

RCN 20025656

Staff

1-10

Focus areas

Huntingtons diseaseneurological conditionsupportinformationadvocacycarersrare diseaseIreland

Languages

EN

Causes & programmes

Causes

HealthMedical research

Works for

PatientsCarersFamilies

How they work

Direct servicesAdvocacy & campaigningAwareness & education

Programmes

Financial Wellbeing Service

Health

Financial wellbeing support for people affected by Huntingtons disease.

Information and Support Service

Health

Provides information, support and advocacy to people living with Huntingtons disease, at risk individuals, family carers and health professionals.

Countries of operation

Ireland

Funding & support

Funded by

Government fundingIndividual donations

Ways to support

DonateFundraiseVolunteerMembership

People

Management & team (3)

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