Jacks Corner Foundation
Southport, CT, United States
About
Jacks Corner Foundation is a charity based in Southport, United States working on medical research, health, children & youth.
Jacks Corner Foundation is a US nonprofit organisation based in Southport, Connecticut. It works to improve quality of life for children with the ultra-rare neurodegenerative disease SPG50 and to find a cure. Its activities include funding gene therapy manufacturing and administration, funding research, and raising awareness of the disease. It supports the Melpida gene therapy developed by Terry Pirovolakis and CureSPG50, which was first administered in a US clinical trial at UT Southwestern in 2023.
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Melpida gene therapy treatment support
Health · United States
Funds the manufacture and administration of the Melpida gene therapy for children with SPG50, and supports ongoing research on the therapy and other potential treatments.
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UT Southwestern, Boston Children's Hospital, University of Cambridge, SickKids Toronto, The Jackson Laboratory, University of British Columbia, University of Copenhagen, UNC School of Medicine, National Institutes of Health
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