Manger la Vie

Manger la Vie

Association Manger la Vie

Boos, France

HealthMedical researchChildren & YouthTax-deductible donations
AssociationFounded 2015National reach
Profile last updated: October 9, 2026

About

Founded in 2015, Manger la Vie is a non-profit association based in Boos, France working on health, medical research, children & youth.

Manger la Vie is a French non-profit association, founded in November 2015 and governed by the 1901 law, that supports patients and families affected by USP7 gene mutations and Hao-Fountain syndrome, a rare genetic disease. It works to raise awareness of the condition to find new patients, provides material, financial and moral support to families, and funds research, including a partnership with the CHU de Nantes. It is recognised as being of general interest in France and is based in Boos, Normandy.

Location

Boos, France

Founded

2015

Organisation type

Association

Legal form

Association loi 1901

Legal name

Association Manger la Vie

VAT number

FR22424761419

Languages

FR

Causes & programmes

Causes

HealthMedical researchChildren & Youth

Works for

PatientsFamiliesChildrenCarers

How they work

Awareness & educationCommunity programmesGrant-making

Programmes

Recherche sur le syndrome Hao-Fountain (USP7)

View

Medical research · France, Germany

Funds research on the USP7 gene mutation and Hao-Fountain syndrome, notably through a convention with the CHU de Nantes, with research also led at Heidelberg University Hospital.

Countries of operation

France

Funding & support

Ways to support

DonateFundraise

Trust

Tax-deductible donations

Credentials & affiliations

Partnerships

CHU de Nantes, Fondation USP7, Heidelberg University Hospital, Institut Imagine

Other non-profits in France

View all