
Manger la Vie
Association Manger la Vie
Boos, France
About
Founded in 2015, Manger la Vie is a non-profit association based in Boos, France working on health, medical research, children & youth.
Manger la Vie is a French non-profit association, founded in November 2015 and governed by the 1901 law, that supports patients and families affected by USP7 gene mutations and Hao-Fountain syndrome, a rare genetic disease. It works to raise awareness of the condition to find new patients, provides material, financial and moral support to families, and funds research, including a partnership with the CHU de Nantes. It is recognised as being of general interest in France and is based in Boos, Normandy.
Location
Founded
Organisation type
Legal form
Legal name
VAT number
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Causes & programmes
Causes
Works for
How they work
Programmes
Recherche sur le syndrome Hao-Fountain (USP7)
ViewMedical research · France, Germany
Funds research on the USP7 gene mutation and Hao-Fountain syndrome, notably through a convention with the CHU de Nantes, with research also led at Heidelberg University Hospital.
Countries of operation
Funding & support
Ways to support
Trust
Credentials & affiliations
Partnerships
CHU de Nantes, Fondation USP7, Heidelberg University Hospital, Institut Imagine
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