MSBase Foundation
Melbourne, Australia
About
MSBase Foundation is a foundation based in Melbourne, Australia working on medical research, health.
The MSBase Foundation is an independent not-for-profit organisation that owns and operates the MSBase Registry, a unique international collaborative registry for clinicians working in multiple sclerosis and other neuro-immunological diseases. The Foundation provides a freely accessible resource for combining, comparing and analysing large datasets to advance collaborative epidemiological and outcomes research for the benefit of people with multiple sclerosis and related conditions. The Registry, which began in 2004, holds over 122,000 patient records from 45 countries. Governance is provided by an international Board of Directors and a Scientific Leadership Group, and day-to-day operations are run by a team hosted by the School of Translational Medicine at the Alfred Centre in Melbourne. The Foundation also supports Registry members with data-entry tools, scientific support and an online platform, and is expanding into neuromyelitis optica spectrum disorder (NMOSD) and MOG antibody-associated disease (MOGAD).
Location
Organisation type
Legal name
Registration
Focus areas
Languages
Causes & programmes
Causes
Works for
How they work
Programmes
MSBase Registry
Medical research
International collaborative registry that collects, tracks, shares and evaluates real-world patient outcomes data in multiple sclerosis and other neuro-immunological diseases, for clinicians and researchers.
MGBase Myasthenia Gravis Registry
Medical research
First global observational registry for patients diagnosed with myasthenia gravis.
Funding & support
Ways to support
Credentials & affiliations
Partnerships
School of Translational Medicine
Other non-profits in Australia
View allFellowship of Australian Writers WA
Arts & Culture
Australian Bibliotherapy Foundation
Mental health, Education
The Fred Hollows Foundation
Health, Disability
Perron Institute
Medical research, Health
elishacare
Addiction, Housing & Homelessness +2 more
Continence Health Australia
Health, Disability +1 more