ÖRSG Österreichische Rett-Syndrom Gesellschaft

Founded in 1993, ÖRSG Österreichische Rett-Syndrom Gesellschaft is a non-profit association based in Hellmonsödt, Austria working on health, medical research, disability.

The Österreichische Rett-Syndrom Gesellschaft (ÖRSG) is a non-profit self-help association founded by largely affected parents of children with Rett syndrome. It operates across Austria and supports families by connecting them with doctors, therapists and other families, offering information, counselling and exchange meetings such as an annual family weekend and autumn meeting. The association also provides public awareness work, including information materials, and promotes medical research into the causes, treatment and cure of Rett syndrome, including financial support for research projects in Austria. Its work is funded mainly by donations, as membership fees bring in only limited income. The association holds a donation-recipient status for charitable institutions in Austria, and its activities are carried out on a voluntary basis.