PA

Paratonnerre

Paris, France

Medical researchHealthTax-deductible donations
AssociationFounded 2012
Profile last updated: May 3, 2026

About

Founded in 2012, Paratonnerre is a non-profit association based in Paris, France working on medical research, health.

Paratonnerre is a French association founded in 2012 by parents of children affected by NORSE and FIRES, rare and severe forms of epilepsy. It funds biomedical research into the causes and treatments of these conditions, supports the collection of biological samples for studies, and runs family events and awareness activities. Its work is directed at affected children, young people and their families.

Location

Paris, France

Founded

2012

Organisation type

Association

Legal form

association loi 1901

Focus areas

NORSEFIRESrare epilepsymedical researchresearch funding

Languages

FR

Causes & programmes

Causes

Medical researchHealth

Works for

ChildrenYouthFamiliesPatients

How they work

Grant-makingAwareness & educationCommunity programmes

Programmes

Projet Chill-BiFrost

Medical research

Research project led by Dr Benallegue, funded by Paratonnerre, on NORSE/FIRES.

Projet Microbiote

Medical research

Research project led by Pr Ravizza, funded by Paratonnerre, on the microbiota in NORSE/FIRES.

Funding & support

Funded by

Individual donationsCorporate partnerships

Ways to support

DonateCorporate partnership

Trust

Tax-deductible donations

Credentials & affiliations

Partnerships

FFRE

Other non-profits in France

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