About
PKU Association of Ireland is a charity based in Skerries, Ireland working on health.
The PKU Association of Ireland is a national charity supporting individuals and families affected by phenylketonuria (PKU) in Ireland. It provides information, advocacy and community resources, raises awareness of PKU, campaigns for better access to treatments and food products, and offers guidance to families and adults navigating the condition. The association is a registered charity with the Charity Regulator in Ireland and is a member of Rare Diseases Ireland and the European Society of PKU. It was established as a small voluntary group to support patients and carers and holds regular meetings and events for its community.
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How they work
Programmes
PKU In Conversation series
Health · Ireland
Online talks and discussions with people living with PKU, healthcare professionals and guest speakers.
PKUAI Patient Portal
Health · Ireland
An initiative to connect people with PKU to information and involvement in shaping PKU care.
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Partnerships
Nutricia, Vitaflo
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