PKU Association of Ireland

PKU Association of Ireland

Skerries, Co. Dublin, Ireland

Health
CharityNational reach
Profile last updated: October 16, 2026

About

PKU Association of Ireland is a charity based in Skerries, Ireland working on health.

The PKU Association of Ireland is a national charity supporting individuals and families affected by phenylketonuria (PKU) in Ireland. It provides information, advocacy and community resources, raises awareness of PKU, campaigns for better access to treatments and food products, and offers guidance to families and adults navigating the condition. The association is a registered charity with the Charity Regulator in Ireland and is a member of Rare Diseases Ireland and the European Society of PKU. It was established as a small voluntary group to support patients and carers and holds regular meetings and events for its community.

Location

Skerries, Ireland

Organisation type

Charity

Charity number

20202487

Focus areas

PKUphenylketonuriarare diseasemetabolic disorderpatient advocacyIreland

Causes & programmes

Causes

Health

Works for

PatientsCarersFamilies

How they work

Advocacy & campaigningAwareness & educationCommunity programmes

Programmes

PKU In Conversation series

Health · Ireland

Online talks and discussions with people living with PKU, healthcare professionals and guest speakers.

PKUAI Patient Portal

Health · Ireland

An initiative to connect people with PKU to information and involvement in shaping PKU care.

Countries of operation

Ireland

Funding & support

Funded by

Individual donations

Ways to support

Donate

Credentials & affiliations

Industry memberships

Rare Diseases IrelandEuropean Society of PKU

Partnerships

Nutricia, Vitaflo

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