Prader-Willi France

Founded in 1996, Prader-Willi France is a non-profit association based in Reims, France working on health, medical research, disability +1 more.

Association Prader-Willi France is a French parents' association founded in 1996 by seven families to support families affected by Prader-Willi syndrome, a rare genetic disease. It is run entirely by volunteers and works to break the isolation of families, provides peer support through regional contacts, runs awareness sessions for schools and care establishments, produces educational and practical resources, and funds or supports medical and scientific research in coordination with the national reference centre. The association also represents users in health bodies and is a member of the Alliance Maladies Rares. Its work covers France.