Rare Skin Conditions Society

Founded in 2017, Rare Skin Conditions Society is a non-governmental organisation based in Singapore, Singapore working on health, medical research.

Rare Skin Conditions Society (RSCS) is a non-profit organisation founded in 2017 in Singapore. It supports patients and families affected by genetic and incurable rare skin conditions, and aims to build a more inclusive society for them, including children who face stigma due to visible differences. Its activities include peer support and community events for patients, families, volunteers and healthcare professionals, public awareness work, and promotion of research into rare skin diseases. It also runs fundraising to help patients with outpatient clinic, treatment and medication costs, including sales of handmade quilts. In 2024 it published the Beyond the Surface whitepaper, based on a regional patient support summit with contributors from six ASEAN countries, which sets out recommendations for improving outcomes for people living with rare skin conditions in the region.