Usher Syndrome Ireland

Founded in 2021, Usher Syndrome Ireland is a charity based in Dun Laoghaire, Ireland working on health, disability, medical research.

Usher Syndrome Ireland is a peer-led, non-profit charity established in 2021 to support people with Usher syndrome and their families across Ireland. Usher syndrome is a rare genetic condition that causes combined hearing loss, retinitis pigmentosa and sometimes balance difficulties. The organisation provides peer support, trusted information for individuals, families and professionals, and opportunities for connection and inclusion. It raises awareness of the condition and dual-sensory loss, supports research into causes, treatment and cure, and advocates for the voices of people with Usher syndrome. The charity was founded by people living with Usher syndrome, is run on a voluntary basis, and is based in Dun Laoghaire, Co. Dublin. It holds charitable status, registered with the Irish Charities Regulator.