
Academia de Boli Neuromusculare (ABNM)
Asociația Academia de Boli Neuromusculare
București, Sector 4, Romania
About
Founded in 2023, Academia de Boli Neuromusculare (ABNM) is a non-governmental organisation based in București, Romania working on health, medical research, education.
ABNM is a Romanian non-governmental medical association based in Bucharest that works to improve care for people with neuromuscular diseases. It builds a network of specialists and provides continuing medical education and training for doctors, physiotherapists, psychologists and nurses. It also runs awareness activities for the public and patients and a neonatal screening pilot for spinal muscular atrophy. The association was founded in 2023 and organises scientific conferences and symposiums, some accredited for continuing medical education credits. Its activities are funded through donations, sponsorships, and membership fees.
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Program de screening neonatal pentru amiotrofie spinală
Health · Romania
Pilot neonatal screening for spinal muscular atrophy in maternity hospitals in Bucharest and surrounding areas, started in August 2022 and later expanded to nine maternity units. Positive cases are referred for presymptomatic treatment.
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Centrul Național Clinic de Recuperare Neuropsihomotorie pentru Copii Dr. Nicolae Robănescu, Universitatea de Medicină și Farmacie Carol Davila, Asociația SMACARE, Asociația Familia SMA
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