Cure HHT Canada
Vancouver, BC, Canada
About
Cure HHT Canada is a charity based in Vancouver, Canada working on health, medical research.
Cure HHT Canada is a registered charity supporting individuals and families affected by hereditary hemorrhagic telangiectasia (HHT), a rare inherited disorder that causes abnormal blood vessels and recurrent bleeding. The charity raises funds for HHT research and improved care, aims to become a hub for HHT awareness and education across Canada, and supports the Canadian HHT Outcomes Registry and conferences. It also works with HHT centres of excellence and partners such as the BioInformatics Service Center at Dartmouth's Geisel School of Medicine, and provides information for patients, families and clinicians in Canada.
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Registration
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Causes & programmes
Causes
Works for
How they work
Programmes
HHT Outcomes Registry
Medical research · Canada
A North American research registry that collects de-identified clinical, genetic and treatment data on people with HHT and follows them over the course of their disease to support research into outcomes and therapies.
Canadian HHT Conferences
Health · Canada
Patient, family and clinician conferences and virtual events that share knowledge and build collaboration within the Canadian HHT community.
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Trust
Credentials & affiliations
Partnerships
BioInformatics Service Center at Dartmouth Geisel School of Medicine, Impact Genetics
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