Ehlers-Danlos Foreningen i Danmark

Ehlers-Danlos Foreningen i Danmark

Nexø, Denmark

HealthMedical research
AssociationNational reach
Profile last updated: October 19, 2026

About

Ehlers-Danlos Foreningen i Danmark is a non-profit association based in Nexø, Denmark working on health, medical research.

Ehlers-Danlos Foreningen i Danmark is a Danish patient association run by a volunteer board, several of whose members have Ehlers-Danlos syndrome. It provides information on EDS and hypermobility spectrum disorder (HSD), publishes brochures and articles, holds lectures and annual courses, offers peer guidance and runs member services. It serves people with EDS/HSD, their families and health and social professionals in Denmark.

Location

Nexø, Denmark

Organisation type

Association

Focus areas

Ehlers-Danlos syndromEDShEDSHSDhypermobilitetbindevævssygdomsjældne diagnoserpatientforening

Languages

DA

Causes & programmes

Causes

HealthMedical research

Works for

PatientsFamiliesChildren

How they work

Awareness & educationDirect servicesVolunteer programmes

Programmes

Patient- og foreningsvejledere

Health · Denmark

Volunteer patient and association advisers offering experience-based guidance to people living with EDS/HSD and to their families.

Countries of operation

Denmark

Funding & support

Funded by

Membership feesIndividual donations

Ways to support

DonateMembershipVolunteerShopLegacy giving

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