NM

National ME/FM Action Network

Ottawa, Ontario, Canada

HealthDisability
CharityFounded 1993National reach
Profile last updated: May 3, 2026

About

Founded in 1993, National ME/FM Action Network is a charity based in Ottawa, Canada working on health, disability.

The National ME/FM Action Network is a Canadian non-profit charitable organisation, founded in 1993 by Lydia Neilson, that works to advance recognition and understanding of Myalgic Encephalomyelitis (ME/CFS) and Fibromyalgia Syndrome (FMS). It provides education and resources for patients, the medical community and educators, including consensus documents, clinical overviews, information sheets and disability application guidance. It also advocates with federal government officials and politicians for better awareness, health care, disability support and equitable research funding. The network publishes the Quest newsletter for members and organises conferences and campaigns, including letter-writing and pre-budget consultation efforts. Its work is national, based in Ottawa, Ontario.

Location

Ottawa, Canada

Founded

1993

Organisation type

Charity

Legal name

National ME/FM Action Network

Focus areas

ME/CFSFibromyalgiapatient advocacyhealth educationgovernment relations

Languages

ENFR

Causes & programmes

Causes

HealthDisability

Works for

Patients

How they work

Awareness & educationAdvocacy & campaigning

Countries of operation

Canada

Funding & support

Funded by

Individual donationsMembership fees

Ways to support

DonateMembershipVolunteer

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