
Núcleo Cavernoma Portugal
Associação Pigmaleão
Algés, Portugal
About
Founded in 2022, Núcleo Cavernoma Portugal is a non-profit association based in Algés, Portugal working on health, medical research.
Núcleo Cavernoma Portugal is a branch of Associação Pigmaleão, a private institution of social solidarity. It supports patients with cerebral and spinal cavernomas, along with their families and carers, and works to raise awareness of this rare neurological condition among the public and the medical community. Its activities include direct support to patients and carers, awareness and educational initiatives with health bodies, the promotion of scientific information, and support for research studies. It is based in Algés, Portugal, and works nationally, with a patient-locating focus across the country.
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Jovens Membros Fundadores
Health · Portugal
Initiative to identify and involve young people aged 14 to 30 who have been diagnosed with cerebral or spinal cavernomas, giving them a voice in the nucleus's decision-making.
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Alliance to Cure, Cavernoma Alliance UK
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