Dravet sindrom Hrvatska

Founded in 2014, Dravet sindrom Hrvatska is a non-profit association based in Žrnovnica, Croatia working on health, medical research, human rights.

Dravet sindrom Hrvatska is a non-profit association founded on 4 November 2014 in Split, Croatia, by parents and carers of children with Dravet syndrome. It serves people with Dravet syndrome and other rare and severe epilepsies and genetic epilepsy syndromes, together with their families. The association works to raise awareness, educate parents and doctors through annual symposiums, webinars, workshops and education, support medical research, and improve health and social care systems and human rights for patients in Croatia. It publishes guidance such as emergency protocols and lists of contraindicated medicines, runs member support groups, and represents patients in European networks including ePAG EpiCARE and the Dravet Syndrome European Federation. Membership is open to people with Dravet syndrome and related epilepsies and their families.