Rare Disease Ghana Initiative

Rare Disease Ghana Initiative is a non-governmental organisation based in Accra, Ghana working on health, disability.

Rare Disease Ghana Initiative is a national non-governmental organisation in Ghana that advocates for and coordinates care for individuals and families affected by undiagnosed, genetic and rare diseases. It raises awareness, provides support and care navigation, including hotlines and outreach, and works to improve healthcare and social services. It partners with government, clinicians and global alliances, and is the national voice for rare disease in Ghana. Its activities include Rare Disease Day, symposiums, family meet-ups and the African Summit on Rare Diseases.